AIM
Treatment for thalassaemia is life long, painful and costly.This compilation aims to look at the magnitude
of the thalassaemia problem in Malaysia and to answer questions frequently asked in relation to thalassaemia.
Hopefully it will encourage the readers to have a blood test to see if they carry the thalassaemia traits
themselves and thus help to stamp out thalassaemia in the future.
This website is maintained by a concerned parent with a beta-thalassaemia major child with the purpose
of disseminating information on this blood disorder. She is presently a member of the Thalassaemia
Action Group University Hospital, Kuala Lumpur comprising of parents of thalassaemics and dedicated
doctors.She can be contacted by e-mail at brewer@tm.net.my. Further information on this disorder can
be obtained from the various Thalassaemia Associations listed herein. Readers are advised to consult
their personal physicians before commencing on any form of treatment or management.
Please read our DISCLAIMER now.
For those interested in serious reading on thalassaemia, an article on beta-thalassaemia in Malaysia by Professor Elizabeth George, Consultant Haemotologist Universiti Kebangsaan Malaysia, Kuala Lumpur, is included (Paper). Queries on this article can be directed to her at eg@medic.ukm.my.